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The FDA just approved rub-on gene therapy that helps “butterfly” children
Antonio Vento is 13 years old. He’s a tiny figure in bandages who doesn’t walk and, until recently, couldn’t see more than shadows. He has dystrophic epidermolysis bullosa, an inherited disease that makes his skin so fragile that kids with the illness are called “butterfly children.”
But now, thanks to a novel gene therapy squirted onto his skin and dripped into his eyes, things are...
The Download: preserving digital lives, and more sensitive prostheses
This is today’s edition of The Download, our weekday newsletter that provides a daily dose of what’s going on in the world of technology. Your digital life isn’t as permanent as you think it is Earlier this week, Google announced its intention to start deleting personal accounts that haven’t been active in over two years in December.…
Your digital life isn’t as permanent as you think it is
Robyn Caplan understands the fragility of digital memories intimately. After tragically losing both of her parents during the covid pandemic, Caplan treasures the digital possessions she inherited. She cherishes her mom’s iPad, access to her dad’s email inbox, and message threads with both of them. It allows her to see the world through the eyes of her parents, she says.
After Caplan...
I just met the founders of a would-be longevity state
This article is from The Checkup, MIT Technology Review’s weekly biotech newsletter. To receive it in your inbox every Thursday, sign up here.
What if I told you there’s a group of people who think death is morally bad—that we have a moral duty to find ways to slow or reverse aging? Who seek to create a new state with its own laws that expedite the development of longevity drugs,...